Sunday, 17 July 2011

A challenge

I wrote a couple of lines on facebook the other day and my friend Liz Bowsher (we were school friends and used to play French horns together) challenged me to write the poem so for Liz here it is.

I Scream in Silence

I scream in silence
I cry in the dark
but when day breaks I paint a smile on my face with lipstick,
so you never know what is going on in this crazy head of mine.
Yes I'll laugh.
I'll be what you want me to be
until the darkness falls,
and then I'll scream in silence
I'll cry in the dark
until the day breaks when yet again
I'll paint a smile on my face with lipstick,
leaving you, none the wiser.




Serious warning!

When I’m an old woman I’ll eat ratatouille
And my house will smell of garlic and onions with
The aroma of olive oil and empty bottles of red wine
And bleach, toilet cleaner, old perfume and loneliness.

But with failing hearing I shall hear the phone
Because day in and day out I’ll long for it to ring.
I’ll chat to foreigners who want to sell me
Life insurance, car insurance and holidays.

Then I’ll put the phone down and hear the silence
And I’ll dust and polish spick and span surfaces
Must keep busy.

I’ll welcome Jehovah’s Witnesses with joy
Because they’re a voice and someone to talk to
Then they’ll go leaving me unconverted
And the Watch Tower they leave will be screwed up in the bin.

But old age I look forward to because
Because I aim to be right pain in the arse
I’m not going to put up with the hassle
That I’ve endured in my younger years
So those who want to control can whistle because I’m gone.

I’m fifty now and not so well but here’s to those
who wish me well and those who don’t can go to hell but….
Warning – what life is left I’ll be living – my way.




Saturday, 16 July 2011

A Brave New World

Okay I've done a week with two hearing aids in and gosh the world sounds very different.

As soon as I had them fitted and left the clinic I stepped out onto the A49 and a lorry went past. I nearly shit myself the noise was incredible, in fact it was quite scary. I then went into my local supermarket the sounds of tills ringing, the noise of people talking - I didn't stay long.

To be fair the audio guy did say that things would sound very 'tinny' and they do, even a week on because I'm not hearing normally and my brain has to get used to it. I hope it gets used to it quickly because tings, rings, bleeps and pongs make me react like a squitish kitten (don't know if that's a word but you know what I mean) but on the positive side I sat talking to a friend who was sitting on my right side and I could hear everything he said.

As I said, a brave new world - still hate the damn things though but I have dyed my hair red and I make a point of wearing earrings - my hair isn't long enough to hide them so I flaunt them or try and make them as part of me as possible lol.

Bugger isn't it?

I did ask the audio guy how long he thought I had with hearing and of course he couldn't answer, he kept going back to age related hearing loss but admitted that at 50 I shouldn't need two hearing aids and yes it must likely was down to the CMT. But proving it is not viable and it won't help me anyway lol.

Thinking of leaving my body to medical science, then they can do all the tests etc they wanted to do when I was alive and I said no to and maybe it will help them find out more about CMT which although it won't help me, might help someone in the future and it will save everyone the cost of a burial.

My body may not be unique but it certainly is in Shropshire - fame at last.

Thursday, 7 July 2011

Angry, angry and even more angry and I also feel guilty

I feel guilty because I feel so angry. There is so much suffering in this world, there are people very close to me who are going through hell so in that respect my anger is totally unjustified.

Let me explain or rather let me look on the positive side. Hopefully things are going well for us at the moment. I'm having a new home, one I can cope with and the lads are going to have their own homes too. Now how often does that happen? Not often I'll tell you.

Dan is working after six months of not working so that is positive. Physically I'm feeling well, so on the whole life is looking good.

But I'm sorry I'm still so angry and it's no ones fault - it's my body, my disease.

CHARCOT-MARIE TOOTH DISEASE - I FUCKING HATE YOU!

Every time I think I've got your measure, every time I feel positive about living with you, you throw up another surprise. We walk hand in hand through life but round every corner you jump out and bite me, throw me back and then expect me to take your hand again. But I have no choice, you are my constant companion.

You know I try and hide the affects you've taken on my body. I hide my legs so no one can see how you've taken away the muscles. I use trolleys to shop and to walk to no one can see how you've affected my ability to move but now you've taken my hearing. Okay I'll soon be able to hide that but what next?

Tomorrow I'm going to be plugged into the national grid, well not quite but that's how it feels. Tomorrow at 12.30 I'm being fitted with two hearing aids. Okay to some, that doesn't sound drastic, to me it's devastating it is yet again, a constant reminder of another part of me I'm losing. To me it's almost the very core my being. Sounds, music, bird songs will have to be and will be stored in my head as my hearing gets worse.

But tomorrow - I'm going to dye my hair red, dark bordeaux it's called. Why? In defiance of Charcot-Marie-Tooth - you who I hate so much.

Monday, 4 July 2011

I will always hear the owl in the orchard

It's a lovely thought isn't it? But it's true. I was told today by a dear friend to go out to listen to everything and anything, to listen to what I wanted to listen to and I'd remember it and I could play it over and over again in my head.

That might sound like a daft thing to say but it's very true. We do remember sounds. I can remember the sounds of the music of concerts I've played in and I can remember the pure joy of being part of an orchestra or the thrill of playing as a soloist. I can still hear that music, years later. I can also hear the audience as they applauded their appreciation of that music.

I'm lucky in that respect because I've experienced it and more so I've lived it.

So yes I will become deaf but I will always be able to hear.

Many, many thanks to my friend for reminding me of that xx

Surprises, Secrets and Skeletons

Do you ever wonder where you come from or rather who you come from?

I’ve always been interested in my ancestors ever since childhood when my Nana would tell me about her Dad and their lives up in Rothbury. I remember when she stayed she used to sleep in my sister’s bed and many Saturday mornings she’d tell me how she used to knit socks for the soldiers in the First World War and how she carried a milk yoke across the moors. Of course to a child, these images were very romantic whereas in reality it must have been a hard life, especially in the winter.

So with these memories in my head and the ever increasing information on the internet I began researching my family history. And found quite a few surprises.

I think the main one was I thought my Mum and Nana came from good old Geordie stock, I’d been brought with the words ‘hinny’ ‘netty’ and the broad vowel sounds of the Geordie accent. But no, wrong.
I discovered that both my Grandad and my Nana’s dad were born in Norfolk so that knocked the Geordie blood on the head. So leaving Newcastle and Gateshead behind I headed south and east (on the computer of course) to Norfolk. There I discovered a murmuration of Starlings and an illumination of Turners. I also was fortunate enough to meet some distant cousins who were able to give me some more information about my great, great, great, great granddad.

The story goes he was supposed to have at the Battle of Trafalgar and they had a sword which allegedly belonged to him. Immediately the romance that I’d imagined when Nana told me her stories went into overdrive. Swashbuckling hero on the high seas, perhaps looking over Hardy’s shoulder and Nelson succumbed to his injuries.

But sadly this was all in my imagination, the sword was of the wrong date and despite intensive research there was no record of an Edmund Starling at the Battle of Trafalgar but maybe he’d been press ganged and didn’t give his right name – I wish.

John Starling
1806-1891
His son John was a right character. He was a painter and decorator, church warden for over forty years and collected the census information for Worstead  in the mid nineteenth century. He was also a writer and some of his work remains today in the Norfolk Archives in Norwich.
He appears to have been a virtuous and quite a pompous man. In 1876 he went on holiday to Great Yarmouth with his wife Hannah. He wrote in a small notebook about his holiday and what he saw but he also gave a brief insight into the person he was. I love this.

‘I am now standing looking at some men lying down gas pipes to lighten the street to the pier. I pray that more may be employed to exibet the true light, hic enlighten every man that cometh into this world.
                A man on horseback very near rode one. I said friend there ought to be room enough in the world for you and me to pass through, He rode away angry.’ John Starling 1876.

I bet he did.

James Massingham Starling
1845-1887
I don’t much about his son, my great, great grandad, James Massingham Starling, other than he followed his Dad into the decorating trade, married Mary Ann Wenn and died at the age of 43.

However, the cousin I met could remember his wife. She told me that in her old age Mary Ann Wenn went blind and Margaret could remember meeting her and Mary running hands all over face so she could a picture of what she looked like.

Mary Ann Wenn
1846-1929
What amazed me about that story though was the fact I was talking to someone in 2003 who had spoken to someone who was born in 1846. To me that takes some getting your head round.

Now the secrets and skeletons.

James and Mary had a son in 1873, my great granddad who was also called James Massingham Starling (sounds posh doesn’t it?) This James was responsible for the move of this branch of the family up to the north east.

In 1895 he left Worstead, his sleepy little village in Norfolk because his elder sister Kate had an illegitimate child (Margaret’s mother) and his way of escaping the ‘humiliation’ was to leg it up north. Little did he know what was in store for him and that history would repeat itself through his eldest daughter, my lovely, brave Nana.

When I was growing up I always understood my Nana had four children. There  was Cyril, who I never met, my Aunty Elsie, my Mum and my Uncle Stan. But this little girl used to earwig in on grown up conversations and perhaps heard things that she shouldn’t have. I’m not sure how I knew but I did and once the internet started producing family history sites, I had a look.

I discovered that in 1919 my Nana had her first child, Ernest William Starling. I’ve no idea who his father was and I doubt there is anyone alive today who can answer that question for me because his name was never put on the birth certificate. I do know that he was initially brought up by Nana’s parents and he ended up in Coventry.

Then in 1926 she had a son James, who again I don’t who the father was but this time she had to have her baby in ‘a naughty girls’ house in Newcastle, described by some relative as a workhouse. I can’t imagine that would have been a pleasant experience by any means. James went to live in Rothbury with his grandad and eventually settled near Newcastle. I don’t remember ever meeting him but I do know that some of the family did have contact with him.

My lovely Nana
1900-1983
Then there was Cyril. He was born illegitimately in 1929. Nana married my Grandad Arthur Turner the following year and he adopted Cyril. However, when Cyril found out the circumstances of his birth he walked out and never saw my Nana again. When she died in 1983 he was invited to the funeral but replied by saying ‘as far as he was concerned his mother died years ago.’ Cruel to us, into today’s world but back then it was a very different world and perhaps circumstances of birth were more important than a mother’s love?

But there are a couple of twists to this story. My Grandad was born in Mundesley, Norfolk in 1880 but his family also came from Worstead and both the Turners and the Starlings had known each other for about 130 years before Nana and Grandad married.

Grandad Turner
1880-1946
The story goes though that Grandad was a widower up in Newcastle/Gateshead and Nana went to live there as a housekeeper (I think that was Great Grandad’s suggestion) and three years later they married.

But perhaps the biggest twist is that three times, before she married, my Nana found herself pregnant and had her children. However, Grandad’s first wife Elizabeth Goodwill was a back street abortionist.

Different times, a different world, a different society but Nana was spurned by many because of what happened and because of the attitude of many, she didn’t or couldn’t tell the truth to her younger children. My Mum grew up believing that Ernest and James were her uncles and not her brothers.

How much did she miss out on because of that belief but I like to think that before my Mum died, she did know the truth and I know it wouldn’t have made any difference to how she felt about her mother – they were two peas in a pod who loved each other dearly and me, well I miss them both terribly but I’m proud that I knew them, I was loved by them and yes, they helped make me the woman I am today.

Friday, 1 July 2011

Today I've learned

That I'm definitely a DBV. In fact I think I'm a chronic DBV. No change that I know I'm a chronic DBV.

What's a DBV. Well it's not up to me to totally enlighten you but if you want to more about it go to http://www.writersbureau.com/blog/writing-inspiratio/2011/07/ where Simon Whaley can totally enlighten you.

But me, yes definitely distracted by views (DBV) which stops me from writing. Okay maybe I can be forgiven because of where I live - right in the heart of the Clun Valley which has been designated as an area of outstanding natural beauty. Clunbury Hill to the front of the house and the Clun Valley to the back of it. But to be honest that's an excuse. There are many and varied reasons why I haven't been writing lately but the views certainly aren't one of them.

It doesn't matter what's outside your window,  it's what is in your head that needs to come out and until you sit down and write you'll always be distracted by the view. Every morning you make your bed, you wash up, you don't do that by choice, you do that because you have to. Writing's the same - you have too, regardless of what's outside.

The other thing I learned today which to me is more important (and that's no disrespect to Simon) is that we need to be totally aware of everything that is going on around us. Sights, smells, sounds and we can never take anything for granted. For me, after a visit to the audio guy today I know that sound will soon be a thing of the past.

Okay you can call this dumping shit and maybe it is. But ever since I discovered I had a love and a gift of playing music, sound has always been important to me. Hey I was the one that could tune an instrument from 50 yards. The very thought of not hearing bird song, not being able to listen to a concert, not being able to listen and have a chat with my friends - scares the hell out of me.

It's been a tough couple of weeks or so and I'm tired of going to bed and still being a wake as the dawn chorus starts - if I'm in the same place tomorrow, I will embrace that sound. Things play on your mind, people you love, you worry about and although you know there's nothing you can do, it doesn't stop you worrying.

To be honest I don't know where my head is at the moment. I do know that for over forty years the biggest fear I've ever had is losing my hearing. I've often said, I'd rather lose my sight than that.  I still stand by that so today's news went down like a lead balloon.

The loss of hearing in the past few years is quite dramatic and if my lot don't start producing grandchildren soon, I will never hear their voices.

Sorry this is pure indulgence but I don't mind admitting that I'm frightened. I know a certain amount about isolation but not the isolation that comes from being locked out from the world.

This is one of those posts I need just to voice how I feel. If you think I'm making a mountain out of a molehole I'm sorry and if I've offended you again I'm sorry. But for me, it's another loss, a very important loss after everything else and I need to grieve that loss.